My kiddos experienced Courageous Kids Camp this week! They aren’t exactly traditional campers so we are grateful for the chance to expose our boys to camp-like activities in a camp-like environment!
👻 HAPPIEST of HALLOWEEN! 🎃
Halloween is always a fun time at our house. The cousins and Shiva come over and we all trick or treat together.
FYI- If your Halloween doesn’t include a floor wallowing tantrum, you aren’t doing it right.
The best dog in the whole world died October 19th. Every member of our family claimed her as their best friend. She knew all the secrets, dried all the tears, warmed all the feet, and are all the food when no one was looking.
There is a hole in my heart and our family. Hoping Simba steps into the family rock quickly. 🙏🏼
Cub has a high IQ. He’s above grade level in math and science. Despite these consistent test results, the school says he doesn’t qualify for gifted education but he doesn’t have “enough creativity points.” Autism doesn’t present creativity in the way you or I would recognize it. Autism’s creativity can appear as pattern recognitions, problem solving skills, building and testing, and creating order. For Cub, he creates complex obstacle courses in the backyard. It’s creative as hell and extremely entertaining. Too bad the school can’t see what I see in this kid! 🤔
There’s been SO MUCH bonding going on between the boys and the animals! ❤️ We are enjoying watching the boys develop relationships.
Prior to this move, Roar could not function through a single day without exhibiting self-injurious behavior at school. He struggled to regulate his emotions, engage with peers, meet the multi step demands of his teachers, and navigate the daily routine.
Roar’s sensory needs hijack his brain. It’s awful to watch. If you stop the behavior without providing an appropriate alternative, he begins scratching his arms/thighs or banging his head on the floor.
His teachers tried ignoring the behaviors but that led to escalation. They tried intervening but that led to escalation. They tried isolation but that led to escalation. They tried holding him but that led to escalation. They tried every tool they had but at the end of the day, they just didn’t have enough tools to help my kiddo. Our relationship with the staff wasn’t always rainbows and sunshine, in fact there were a few incidents that I found unacceptable but I do feel they tried their best until desperation took over.
The new school is incredible. The teachers meet Roar’s needs and limit the demands placed on him. He doesn’t have to wear shoes (big issue), he’s allowed to climb and even encouraged to do so (big issue), he’s supported when he escapes situations that overwhelm him, his hoarding is treated as a coping skill rather than a problem behavior, vestibular sensory input is incorporated into his day at regular intervals.
Stay tuned. This kid is making serious progress. 😉
Things have been rough here lately. Looking back I probably won’t even remember why. I’m far overdue a post and have so very much to share but it will just have to wait.
This is my outlet and I enjoy it. Life has suddenly become a bit too overwhelming to enjoy. Moments of joy seem like I’m robbing Peter to pay Paul. Two special needs kiddos is no joke. One isn’t either.
I swore up and down that good parents give it 💯. It doesn’t matter what it looks like, it’s still 💯. Somewhere along the line, it seems I started giving more than 💯. Taking from me and giving to them.
Now we are all at a deficit.
It will get better. I won’t remember this week. Life will go on. But today, this week, this month, Ugh. M