We took Cub and Roar to our family farm for Easter. It was a wonderful weekend.
Roar struggles with safety and impulse control on the farm. Any farm is dangerous if you aren’t aware and cautious around equipment, livestock, tools, etc. Roar is NEVER aware or cautious. NEVER. He’s up for anything. We have to watch him like a hawk!
This trip, I brought his compression weighted vest. When we got to the farm, I put it on him and we went for a walk. He walked the whole time (.25 mile)- no running and no unexpected detours!
Funny thing is we’ve had this vest for six years and this is the second time it’s been worn. It was Cub’s but he hated it and didnt respond to it. We ended up going with a weighted non-compression for him. This vest has been patiently waiting to be “really useful.” (Sorry for the Thomas the Tank Engine pun)
So now we are taking it to and from school daily so everyone can experience it’s magical powers.
Sometimes Cub just can’t get control of his body. His body needs so much sensory input for him to regulate.
When Cub was 11 months old, he would head bang to regain control during a meltdown. Watching our baby slam his head on the hardwood was heartbreaking and scary. We started early intervention soon after head banging began.
Now, six years later, Cub has had years of Therapy to address emotional regulation (prevent the meltdown using coping skills) and sensory regulation (meet the body’s need for increased input).
That doesn’t mean he’s “cured.” It means he has the knowledge to utilize coping skills when he gets upset (with caregiver prompting- co-regulation. We aren’t to independent self-regulation just yet.) That’s actually why I’m writing this post. We always ask Cub and Roar, “What do you need?” to prompt them to verbalize their needs and access their self regulation “tools.”
This morning Cub woke at 4:00am. He’s been crashing into all the furniture and driving me nuts! Then he said, “My body wants it.” AMAZING.
I sat down and let it happen. He crashed into the front door, began spinning all the way to the back door and crashed into it. Then back to the front door. He did this for maybe 3 minutes. Then he stopped, sat down on the couch and said, “Lets go. It’s time for school.” WOW. Regulated and ready to go. All by himself.
This journey with autism is a rollercoaster. I’m choose to celebrate everything. Every success has a story of blood, sweat, and tears but that just makes the success sweeter!
My babies are sick. Only a matter of time until they “share” with me. Neither of them share anything except germs. Somehow, I have two only children.
When they are sick, though, they are both cuddle bugs! I can’t get enough. 🙂
Took Cub and Roar to ICE @Gaylord. It was an event only open to special needs kiddos.
Cub loved it. Roar hated it. Fun times. 🙄
Cub’s school has a run fundraiser every year. Last year he got overwhelmed after four laps and sat on the pavement with his hands over his ears.
This year, I went too! My mom came as well. We took turns walking the laps with him. He got to 11!
We ran into some issues because Cub, never one to miss a science opportunity, found a crack in the pavement which cued up an entire science lesson on how water expands when it freezes and moves anything in its way.
He also taught his Sheba about typhoons, and land to ocean ratios.
After he finished he got chocolate ice cream! His favorite. 😋🍦